One in 100,000 live births in the United States is afflicted with Krabbe Disease. Approximately 2 million people (or one out of 125) in the United States are carriers of the genetic deficiency that causes Krabbe Disease. Yet, awareness about this disease is very limited. Until recently the only treatment options were limited to symptom management and palliative care. Now, a new and revolutionary treatment, Cord Blood Transplant, is saving the lives of many sick, young children and babies. This new method of treatment is bringing new hope to those afflicted with a variety of diseases including Krabbe, other Leukodystrophies and Lysosomal Storage Disorders.

Hunter's Hope Foundation was established to address the acute need for information and
research with respect to Krabbe Disease and other Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses. Accordingly, our mission is four-fold:

• To broaden public awareness of Krabbe Disease and other Leukodystrophies thus increasing the probability of early detection and treatment. children with Leukodystrophies.
• To gather and provide current, functional information and service linkage to families of children with Leukodystrophies.
• To fund research efforts that will identify new treatments, therapies and ultimately find a cure for Krabbe Disease and other Leukodystrophies.
• To establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial and emotional support of family members and those afflicted with Leukodystrophies. Among the essential goals, founders Jim and Jill Kelly seek to inspire an appreciation of all children and express a thankful heart toward God for these precious gifts of life.